 He explained to me that these tests the antibodies in my system  that fight against the bacteria, and if my immune system is down, there  will be no antibodies to measure. He told me we had to build up my immune system again before he retested me. The tests given to most patients who initially show symptoms of  Lyme are only 50% reliable, giving false negatives and also false  positives. The tests routinely given by most docs is the ELISA test,  which is standard CDC procedure (which needs some tweaking too, in my  opinion). The thing they don't realize (or maybe want to admit) is that  it measures the ANTIBODIES in the blood of the patient. So, if a patient  is having a flare at the time and the immune system is down, the  antibodies will not be fighting, so they will not show up on the test. I had recently had a Western Blot test, which had shown some bands for Lyme, but the way the test is done doesn't indicate what bands are found and where in the blood and at what time.
He explained to me that these tests the antibodies in my system  that fight against the bacteria, and if my immune system is down, there  will be no antibodies to measure. He told me we had to build up my immune system again before he retested me. The tests given to most patients who initially show symptoms of  Lyme are only 50% reliable, giving false negatives and also false  positives. The tests routinely given by most docs is the ELISA test,  which is standard CDC procedure (which needs some tweaking too, in my  opinion). The thing they don't realize (or maybe want to admit) is that  it measures the ANTIBODIES in the blood of the patient. So, if a patient  is having a flare at the time and the immune system is down, the  antibodies will not be fighting, so they will not show up on the test. I had recently had a Western Blot test, which had shown some bands for Lyme, but the way the test is done doesn't indicate what bands are found and where in the blood and at what time.Right away, he had me do a  detox diet and started me doing an herbal antibiotic and homeopathic  remedies. I did not want to do a harsh standard antibiotic treatment - although it was an option -  which would hurt my digestive tract and liver. The reason detoxing is done concurrently with the antibiotic is because  the Borrelia burgdorferi bacteria releases a neurotoxin as it is killed  off, which is called the Herxheimer Reaction. Really, all the symptoms  come back in full force. So I am currently on the least amount homeopathically, and  when I go up to the next level, I can barely walk. It's quite  astonishing.  
After a few months of an herbal antibiotic and detoxing, my doctor gave the green light to test again. I was finally diagnosed with a test that was sent  out to Cali. It is more detailed and tells the doctor exactly what is  floating around in the blood and how long I've had this. Basically, he  tells me it's done nerve damage at this point because it's been  misdiagnosed and untreated for 3 1/2 years. But as a healer, I believe I  am healing now, and so are all the nerve cells in my body. Hell, I no  longer need a wheelchair, so watch me!
There are soooo  many people with chronic Lyme with a similar story. Some have been  misdiagnosed with MS, Lupus, and of course a few have been told it was  "in their heads," which at one point I was told as well. I shake my head at it all. Of course, as a woman, I  wonder if more woman with Lyme (or any other undiagnosed illness) are  accused of the "it's in your head" theory because they are a woman, and  doctors feel a need to label.
But I know there is a reason for everything, and though I would not want to restep the path of what has happened to me, I would not want it to happen any other way. I am somehow utterly grateful for the tick that bit me.
 
 

 
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